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The Wales Dementias and Neurodegenerative Diseases Research Network

Service Users and Carers

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Would you like to become more involved in research?

NEURODEM researchers welcome the input from service users and carers to their research. This may be through participating in a clincal study (see research case register) or inputing your ideas into the design of a study. If you would like to become involved, then please contact us.

For researchers: we are working with Involving People to facilitate representation in research development. If you are a PI and would like to recruit service users/carers for your research, please read the following documents.

Getting Started – how Involving People can help (English or Welsh)

Guidlines for researchers (English and Welsh)

Request for help to recurit service user/carer

Note - Involving People are funded to facilitate involvement to all NEURODEM research projects and research development, and will meet all service user/carer costs.

 

Archive:

The following documents are available for you to download;

  • For a copy of The NEURODEM Cymru: User and Carer Participation (UCP) – Quarterly Report 4 November 2007 click here.
  • For a copy of the user carer participation in research general consent form, click here.
  • Involving People Progress Meeting, 19th March 2008, Swansea. For more details click here.
  • User and Carer Participation quarterly report (September 2008).